Lunar Cheers for Heart Heroes
NUHCS Congenital Heart Surgery Parent Huddle 2024
PULSE Issue 43 | July 2024
On 2 March 2024, the National University Heart Centre, Singapore (NUHCS) organised the annual NUHCS Congenital Heart Surgery Parent Huddle in partnership with Congenital Heart Association Parent & Patient Support Group (CHAPPS), bringing together patients and their families in the journey of caring for a child with Congenital Heart Disease (CHD). This year’s Parent Huddle was especially significant as it was organised alongside the Lunar New Year festivities, creating a heartwarming atmosphere reminiscent of a family reunion.
What is Congenital Heart Disease (CHD)?
Range of birth defects affecting the heart’s structure and function during fetal development.
Defects can involve the walls, valves, arteries and veins of the heart. Some common conditions include:
- Septal defect - Hole in the heart’s wall that separates the chambers, disrupting blood flow to organs
- Tetralogy of Fallot (TOF) - Combination of four heart defects that reduces or obstructs blood flow to the lungs and body
- Transposition of the Great Arteries (TGA) - Abnormal positioning of the main arteries leaving the heart, causing improper circulation of oxygen-rich blood to the rest of the body
Beyond the traditional gatherings and customary celebrations, the Parent Huddle embraced a spirit of togetherness and resilience from the shared experiences of caregivers alike. From the spirited performances of the lion dance to the heartfelt stories of support shared over light refreshments, a sense of community and belonging was palpable throughout the event.
At the heart of the event lay a series of insightful discussions and sharing of personal experiences. Families had the opportunity to engage with the NUHCS’ Congenital Heart Surgery doctors, gaining valuable advice into the management and treatment of heart conditions for their child and/or family member.
In an intimate sharing session, Mr Tan Xing Chun, a 40-year-old CHD warrior, opened up about his personal journey of battling with heart disease through the years and now, living life to the fullest whilst still coping with CHD. Mdm Jeannie, mother and caregiver to her late daughter, Amelia, who was born with CHD, also shared a heartfelt encouragement to all families as she recounted her experiences taking care of her beloved daughter and the worthy significance of the whole journey.
They each offered glimpses into their personal journeys; each narrative a testament to the courage and resilience of CHD patients and their caregivers. Their words resonated deeply with the attendees, offering hope, inspiration, and assurance in the face of adversity, knowing that those going through CHD are not alone in their journey.
"Being a heart patient does not mean that you are labelled. Understand your limitations and work on your strengths. Life is still going to be very colourful and vibrant."
- Tan Xing Chun (40-year-old CHD warrior)
"Although we can’t see you anymore, we can feel your presence around us always."
- Jeannie (Mother and caregiver of her late daughter, Amelia, a CHD patient
NUHCS is dedicated to delivering comprehensive care to ensure the holistic wellbeing of every patient. This Parent Huddle event fostered heartfelt connections within the community, and offered a supportive space for families with children battling congenital heart conditions.
